MCHP Accreditation - Introduction

MCHP Accreditation - Introduction

Social and Demographic Research Data Workshop Use of the Manitoba Population Research Data Repository at MCHP Charles Burchill, December 9, 2016 1 Manitoba Centre for Health Policy Traditional Territories Acknowledgement The University of Manitoba campuses are located on original lands of Anishinaabeg, Cree, Oji-Cree, Dakota, and Dene peoples, and on the homeland of the Mtis Nation. We respect the Treaties that were made on these territories, we acknowledge the harms and mistakes of the past, and we dedicate ourselves to move forward in partnership with Indigenous communities in a spirit of reconciliation and collaboration. 2 Manitoba Centre for Health Policy U of M Research Unit MCHP is a research unit within the Department of Community Health Sciences. Houses the Manitoba Population Data Repository social services, income support, housing, education, population demographics. Founded 1991 Currently supports over 200 active research projects, with over 130 publications/presentations

last year The Centre involved in teaching and graduate student support, with 20 courses, lectures or tutorials delivered, and 54 graduate students supervised in 2015/16. 3 Manitoba Centre for Health Policy MCHP Home Annual Reports 4 Manitoba Centre for Health Policy Research at MCHP Deliverables Five major projects annually (deliverables) Knowledge translation through RHA, WRHA, MHSAL days Child and Family Services Interventions and Educational Outcomes, Child and Family Services Interventions and Justice System Involvement, Living in social housing How are Manitobas Children Doing (In Care, Education, Assistance) Transitions (18-21) to adult, social services

Deliverables PAX (Good Behavior Game, outcomes) Research Projects Researcher driven & funded projects Cost recovery not for profit PATHS Youth violence Public Housing and Residential Mobility 7 Manitoba Centre for Health Policy Research at MCHP MCHP Houses the De-Identified Manitoba Population Research Data Repository Hospital Hospital Hospital Hospital Physician Physician Physician

Physician Services Services Services Services NursingHome Home Nursing Home Nursing Home Nursing Justice Justice Families First EDI Social Social Housing Housing Healthy Healthy Child Child MB MB PopulationBased Registry

HomeCare Care Home Care Home Care Home Immunization Immunization Immunization Immunization Income Income Assistance Assistance VitalStatistics Statistics Vital Statistics Vital Statistics Vital Family Family Services Services Pharmaceuticals

Pharmaceuticals Emergency Emergency Emergency Emergency Department Department Department Department Education Education K to Grade 12 Post-Secondary (UofM) 8 Census Data at Area Level Clinical Clinical Clinical Clinical CancerCare CancerCare CancerCare CancerCare

Medical Medical Medical Medical Laboratory Laboratory Laboratory Laboratory Manitoba Centre for Health Policy Health Health Health Health Surveys Surveys Surveys Surveys ICU ICU FASD FASD Pediatric Pediatric Diabetes Diabetes Cardiac Cardiac Surgery

Surgery Scope and Coverage - Represents whole Manitoba Population - Data are installed/updated after year end files are closed Repository Home 9 - Data are de-identified with a common encrypted ID - Linkable but not maintained in a linked format. - Can be used only for approved research projects Manitoba Centre for Health Policy 10 Manitoba Centre for Health Policy http://umanitoba.ca/faculties/health_sciences/medicine/units/chs/departmental_units/mchp/resources/repository/datalist.html Data Information 11 Manitoba Centre for Health Policy

11 http://umanitoba.ca/faculties/health_sciences/medicine/units/chs/departmental_units/mchp/resources/repository/datalist.html Data Information Courts (CCAIN) 12 Manitoba Centre for Health Policy 12 http://umanitoba.ca/faculties/health_sciences/medicine/units/chs/departmental_units/mchp/resources/repository/datalist.html Database Descriptions - External Database Name Source Agency Type Purpose Scope Data Collection Method Size

Data Level Data Years Data Highlights Access Requirements More Information Revision Date Repository Home http://umanitoba.ca/faculties/health_sciences/medicine/units/chs/departmental_units/mchp/resources/repository/datalist.html 13 Manitoba Centre for Health Policy Research Tools Concepts and Glossary Link to Site 16 Manitoba Centre for Health Policy

Accreditation (New) Use of Repository Feasibility Review Research Proposal Contracts Student Projects Approvals REB HIPC

Provider (Data List) Researcher Agreement Project Proposal Review and Approval Costing and Feasibility (existing Policy and Procedure HIPC Approved REB Project Start Notification Others Project Provisioning (new process) Data Analysis

Statistical (anonymous) output Audit Training/ Orientation (project specific) Additional Training Consultation Analytics and use of line level on MCHP sys. Publications Denied RA Analyst/Data support or RAS Completed Vetting/Output Request Project Completion

Project Archival http://umanitoba.ca/faculties/health_sciences/medicine/units/chs/departmental_units/mchp/resources/access.html 17 Manitoba Centre for Health Policy MCHP Provided Support 20 Review of proposals for feasibility and cost estimates (this step is required prior to submissions to HIPC) Examples and Templates available for HIPC, HREB Assistance with approval letters to data providers for ongoing repository data System and data orientation

Data documentation Space if necessary, billed monthly on a cost recovery basis Manitoba Centre for Health Policy Timeline and Cost? Time to Conduct Feasibility to approval. Expect 4 months 24 Costs Dependent on project scope Feasibility review provides estimate Cost recovery for MCHP\ Cost Drivers

MCHP Analyst doing analysis, RAS use Scope of Project and complexity of data/analytics Graduate Student Private Sector funding Change in plans Manitoba Centre for Health Policy Lessons Learned KT You are not the only expert information flow is a two-way street it takes a period of friendship, then courtship, then engagement, then partnership! respect the knowledge base & perspectives of your partners you can learn from each other

knowledge translation takes place all Need to Know Team along the way, not just at the end of the research clinicians have insight into the data that can enhance our understanding. 26 Manitoba Centre for Health Policy Thank You / Questions umanitoba.ca/centres/mchp facebook.com/mchp.umanitoba twitter.com/um_mchp (@um_mchp) 27 Manitoba Centre for Health Policy

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